Finding a Different Path
Redefining "success:" Resolving without parenting after infertility and loss & rebuilding a beautiful life
I Approve of This Message
Shenanigans, M-Day, NPE, and PMOS
Thank you for the birthday wishes! I had a great time, and it keeps going through the magical mystery weekend over Memorial Day that Bryce is taking me to... Look at me, being okay with surprises!
Shenanigans:
My best friend popped over for Friday night (it was her son's birthday Saturday and he's at a nearby college, but we were able to visit too which was lovely). Behold, my favorite 50th birthday shirt:
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| The bottom of the shirt, under the dancing raccoon, it says "Half a century of shenanigans" |
Mother's Day followed, and somehow I managed to have it pass without incident. My survival strategies worked:
- Do not go on social media
- Do not listen to the radio with commercials
- Do not go to the grocery store
- Plant lots of plants
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| The left side of the birdbath garden, with the toad house, and new wild columbine, spider plants, helenium, and salvia caradonna |
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| The right side of the same garden, there's bog sage and verbena bonariensis along the fence and I'm so pleased my coreopsis and agastache is coming back strong on the right! |
I also went up and visited with my mom and helped her get her annuals at a nursery near her, which was a nice compact visit without being in the mass market fray, and absolutely NO ONE wished me a Happy Mother's Day. Wahoo.
I was also pleased that the messages from our building administration AND our superintendent recognized "mothers and mother figures" and the building email recognized that this can be a time of grief and loss. WHAT A TERRIFIC CHANGE!
Mostly I am so very glad that Mother's Day is not the horrible grief bomb it used to be.
My sister was on a podcast! She joined the host of Unraveling Me for her episode, "Unraveling Amanda." I highly recommend the listen. She's honest, funny, and sharing a very difficult piece that she's only recently publicly embracing. Amanda is very involved in the Right To Know organization, whose mission is: Empowering individuals and families impacted by misattributed parentage, adoption, donor conception, NPEs, and DNA surprises through education, support, advocacy, and community engagement since 2019. (NPE = Non-Paternal Event). I am insanely proud of my sister for letting go of shame that didn't belong to her and living an authentic life, with all her pieces. I will direct you to the podcast to hear her tell her story of NPE.
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| Sisters as kids on the Long Island Sound |
Right to Know also has incredible resources for families regarding adoption and donor conception in addition to DNA surprises. Their Resources page has a lot, including fact sheets towards the bottom that are concise yet helpful. My sister co-runs a support group through the organization and attended the "Untangling Our Roots" conference. It's a great place for belonging if you have a known or recently revealed complex genetic identity.
Lastly, in my google feed today I saw... PCOS (polycystic ovarian syndrome) is now PMOS (polyendocrine metabolic ovarian syndrome). There are a bunch of articles, but this one from CNN was the most thorough in my opinion: PCOS, a condition impacting millions of women worldwide, gets a new name. Why is this name change important? First, research and understanding of women's health SUUUUUCCCCKKKKKSSSS. Second, this is going to address the parts of the syndrome that aren't focused solely on the ovaries. I was diagnosed with PCOS during fertility treatments, and no one seemed to give a hoot about it once I wasn't trying to conceive...even though it has lifelong implications with metabolism, increased stroke/heart attack/diabetes risks, and should be part of my overall health profile, not just my reproductive bits. The hope is that more people will get an accurate diagnosis and better healthcare throughout their life. Fascinating stuff!
Well how's that for a mishmash of an update? I have been underwater lately and figured putting it all together in one post versus hoping I have time for several separate ones will get me to typing and posting. :) Enjoy!
Reflecting on the Last Decade
Here it is... today is my last day of being a perfect square, 49. Tomorrow I am officially fifty...which seems substantially younger than it used to now that it's upon me!
I was thinking on my forties as I enter into a new decade. What did they look like? What major things happened? And then, I went down a rabbit hole.
Things that happened:
When I turned forty, I had a big party. That is completely not even remotely appealing to me for this decade. I wore a hotsy totsy dress and pepper deelie-boppers (because Cinco de Mayo). I got rather toasted on tequila. I was trying so, so hard to be at peace with a birthday that felt like a closing of a door. I had my first "fun hair color" that I felt so brave and edgy for doing...
I thought, WOW! So bright! So red! (Future me is cracking up.)
At forty we were pursuing adoption. We lived in our old house. We had a baby shower in April (technically I was 39 then) and set up our nursery.
Then forty-one came. That was The Year Everything Fell Apart, 2017. Well, by the time my birthday arrived, everything had already fallen apart. I'd had my autoimmune eye disorder due to extreme stress, I'd had my months of high prednisone craziness, I'd had my breakdown and my emergency room visit thanks to stroke-level blood pressure. And we had decided by my birthday that we were DONE. That we'd hit our enough, and that we'd never be parents.
This is me trying to celebrate while feeling like I'd run through a trauma gauntlet:
That year sucked. We packed up our nursery. We told everyone we'd left the parenthood path. It was so, so hard.
But also, in the midst of all that, I submitted and achieved my National Board certification in Exceptional Learners. Which is a pretty darn good achievement.
The summer after my 41st birthday, we took our 8-year delayed honeymoon, a fancy schmancy 2 week trip up and down the coast of California. Here we are in Napa, Carmel, and Santa Barbara:


And, in November of 2017, I got a big 'ole back tattoo to signify our losses and rebirth to a new life:
I will be here forever if I go birthday by birthday, so here are highlights of things that happened, not necessarily in order.
In 2018 we moved out of our old house and into our new house. Like the tattoo, this was hugely symbolic of leaving the house we thought we'd raise a child in, and starting fresh in a house perfectly made for our new life.
I had a bunch of surgeries -- a hysterectomy, followed by two knee replacements. Bryce said, "Why are you focusing on negative things?" and I heartily disagree. All three of those surgeries resulted in FREEDOM. Freedom from an organ that did nothing for me but torture me. Freedom to regain mobility and movement without pain. Really, shedding those "broken" parts were tremendous victories that have led to tremendous quality of life.
We saw the Rochester version of a total solar eclipse (it did get dark and eerie, but it was CLOUDY). I mean, this could be any average Tuesday in Rochester.

We saw the aurora borealis IN OUR DRIVEWAY. (Still want to see the Arctic version, but that was pretty darn cool.)
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| Remember those handmade sock masks? |
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| Oh Pumpkin, I miss you. |
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| Here we are going to prom together in 1994 |
I flew solo to Nashville to visit a close friend since college (who is taking this picture):
I think overall, it's been a great decade. A decade of change, of doing things that scare me, of remaking a life. Kind of interesting, because my 30s were all about starting over for different reasons, and resulted in a very different life than my 20s.
Inclusive Infertility Awareness
I used to participate in RESOLVE's NIAW (National Infertility Awareness Week) all week. Of course, it used to be more blog-focused and less influencer-focused, which made it somewhat easier for me to participate. It does feel like so much now is based in social media like Instagram and TikTok, and I am on neither. (Although I am increasingly considering Instagram.)
I am on Facebook off and on, and this past week I was doing a weeklong training in a structured literacy program that I could do from home, so I had a little more time to diddle around on my phone.
I saw things about NIAW, and one thing that really stood out to me was a post from my former fertility clinic. The post was lovely, a picture of staff and how their mission is to help people, but it was the comments that got my wheels turning. Every single one was someone posting pictures of their children. Things like "my Day 5 blast is graduating this year" which is incredible, and fantastic for the people who a) had Day 5 Blasts and b) had viable pregnancies and births. No shade on that at all. But when I saw comment after comment thanking the clinic for the existence of children, I felt like the narrative was skewed. And of course it is -- who is going to thank them for not succeeding?
Um, I did.
Because I need there to be representation that IVF DOESN'T ALWAYS WORK, despite media coverage to the contrary. Soooo I posted, "Thank you for your compassion during our journey -- we were not successful but are so grateful for the care you showed throughout every treatment and every loss. You are a special place! Special thanks to [awesome nurse and doctor here]."
And then I thought, Hmmm. I have a complicated relationship with the "not successful" statement.
So I posted my own post on my own page, that said this:
On this last day of NIAW (National Infertility Awareness Week, sponsored by RESOLVE), I would like to share some lesser-posted things:
- You can do fertility treatments, even IVF, and NOT get pregnant.
- You can do fertility treatments, even IVF, and NOT have a live birth.
- You can do all the things: supplements, yoga, acupuncture, steam your lady bits with a witchy herbal brew you squat over and hopefully don't burn your inner thighs, do positive intentions and cyclical guided meditation, take wheatgrass shots daily, do experimental protocols...and STILL NOT END WITH A BABY.
- You can feel like you've made your whole life revolve around doing everything "right," oozing positivity between clenched teeth, and STILL NOT END WITH A BABY.
- It can take a long time to realize you weren't at fault, you didn't "fail," and what worked for others doesn't work for everybody.
- You can suffer loss, and NOT end up with a Rainbow Baby, a Miracle Baby, a Dreams Do Come True Baby.
- What you can do is create a Rainbow LIFE.
- It is insanely hard to buck the "never ever give up" cult of positivity. To face comments about how you "gave up."
- It is not GIVING UP to choose the life you have over the life that you've hoped for. To say ENOUGH at any point in the journey. To remake your life into a new vision. To accept that everyone doesn't get everything.
Living a life without children when you really, really wanted them is not always easy, but it can be wonderful, fulfilling, and meaningful. It is for me, for us.
NOTE: Adoption is not "fertility treatment part II." It is its own process, and is often fraught with ethical swamps and a distinctive un-centering of adoptees, who have zero choice in the decision most of the time. Adoption can build a family, but usually that is by splitting up a first family. There are complexities that often aren't fully disclosed. You can also enter the adoption process and leave without parenting for a ton of reasons. Please, for the love of all that's holy, do not ask people if "They've considered adoption" or "Why don't you JUST adopt?"
I was overwhelmed by the response. So many people (several I was unaware of having these shared experiences) said YES. This. This is how I feel. Or, I understand more now. Or, sending love having gone through processes but parenting through various means.
I worry sometimes that when I put out my caveats about adoption, that it looks like sour grapes. That it didn't work for me, so I'm critical of the process. For me, it's not THIS DIDN'T WORK FOR ME, IT'S A BAD SYSTEM. It's that the more we learned about adoption, the more I spoke with and listened to adoptees and birth moms, the more I felt uncomfortable with the adoption process. I did go into adoption as "Fertility Treatment Part II." I really respect the countries that make you wait a year after fertility treatment before entering the adoption process, because that separates the two processes a bit more and encourages time for healing before starting another process. I was first shocked at how hard the adoption process was, then horrified at how adoptive parents were centered and how transactional everything felt, and how financial disparity figured in SO MUCH. It became very uncomfortable and while I still wanted to become a parent through adoption, I was not some sort of saint who left because it was unethical, I do think our increasing awareness about the ethical swamp of adoption made us unwilling to follow the agency's suggestions for how to "get more opportunities" to be seen and possibly matched. It's important to me that I am not presenting myself as some sort of "I'm better than you" person when it comes to adoption. It's just when you know more about a seriously flawed process and how it impacts those with the least agency, it makes it really hard to look back at the rosy-colored-glasses that we were given by the agency on how it's "when, not if you'll be a parent" when a) that's not true and b) it is SO much more complicated than that.
So, that's how I participated this year. On the last day. Putting out there that you can go through all that and have no baby, but you can advocate and share with people that your life is not sad, that while it's a huge loss it also opens other doors to other opportunities, and that you can figure out some way to remake your life after the loss of a dream.
These are the photos I attached to the post: one on our wedding day (such YOUNG people!) and one at our 16th anniversary weekend getaway this past October (such HAPPY people!).
Two Sides of "As a Parent"
Flashback
The other day, Bryce showed me something super cool that he did at work. It was a highly zoomed in video of a dark screen, and then there was a quick flash and everybody in the lab cheered with excitement.
Basically, whatever was inside a thing went into a quantum state, and the flash was that moment.
(Every time Bryce talks about quantum physics, all I can think of is Antman, which tells you just how "science-y" I am...)
"Isn't that cool?" he said, as he played it one more time.
"Yeah, super cool..." I said.
Bryce noticed that I looked a little off. "What's going on? This is a great breakthrough!"
Well.
Anyone who has done an IVF cycle knows that there is a moment when you are looking at a dark screen, and then there is a quick flash of light.
It's not something going into a quantum state.
It's when the embryo is released from the pipette into the uterus during transfer, and the two-week-wait begins.
The last time I saw that flash, I teared up and said, "I'm so sorry you're going to die in there, but I really hope you don't... good luck."
That was probably an indication that we should have stopped treatment sooner. It was my last flash, because after that, I couldn't get to transfer because my uterus went on strike.
I felt bad, because it was this immediate flashback, and I couldn't help the way my lip twisted when I saw the insanely cool thing that Bryce was showing me.
This early spring season is a minefield of flashbacks. Nine years ago around this time is when everything went spectacularly awry, I ended up in the emergency room, and then I had a mental breakdown...which led to us ending our adoption journey. Eleven years ago in February was our last attempt to complete an IVF cycle.
In spring, I can focus on other things for the most part -- the flowers starting to pop up and unfurl in my gardens, the joys of Spring Break, our first outside ice cream of the season. I can take that flashback and redirect it to what is here, and now. A season of renewal.
I just can't quite control the twisted lip and teary eyes that come first.
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| Hellebores popping up from the leaf litter I'm still leaving for baby fireflies |
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| My first daffodil! (These are naturalized, which is why there's grass, too) |
Space to Breathe
I have felt underwater for some time. Some of it is IEP season, some of it is this year's schedule, some of it is undoubtably the neverending winter (that seems to be turning a corner, finally), some of it is just existential exhaustion from the world in general. Between February break and Spring Break, I pretty much just put my head down and muttered "just keep swimming" like a lunatic. I am pretty sure I feel somewhere in the region of the overwhelm that I feel now every year at this time, but it just feels amplified.
So, we planned our trip to go glamping in the Catskills mountains. Partly because February break was spent prepping for and stressing about my bonus colonoscopy and so it felt distinctly un-break-like, I really, REALLY needed to go somewhere for this one.
There is something about going somewhere else, about disrupting your regular routines, that presses a reset button. There were two recent posts that made me think on this again: Mali's The Healing Power of Travel and Klara's Twenty Years Since the Glacier Taught Us to Breathe Again, which was the inspiration for Mali's post. I feel these posts, because we have also used travel (albeit less exotic travel) to heal. We went on our epic 2-week California Coast trip in 2017 when we ended our parenting journey. More recently, we escaped to Vermont for a quick weekend overnight when our beloved cat, Lucky, died.
This time, I needed to feel...away. I needed to escape a feeling of constantly being behind, of never feeling done, and frankly a rise in anxiety and depression. Instead of hopping a plane to another country (still something we desire to do but feels impossible right now due to current events), we drove less than 4 hours to a glamping compound on a lake.
It was amazing to plan for -- that alone lifted my spirits. What will we cook? What will I read? Can I finish a 1000 piece puzzle in 2 days? (Um, no.) I went to the website for the place almost daily to review the photos of the domes, of the lake, of the firepit area. We haven't done anything quite like this before, which was also good because we are serious creatures of habit. We find something we like and then BOOM, that's what we do ad nauseum. It's a comfort thing, so I was proud we branched out this time.
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| View out the window of the dome, taken from the floor for reasons you'll see later |
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| Seating area on the deck outside the dome |
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| The little reading nook -- that chair was quite cozy |
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| The sitting area with cool mod fireplace and what I hope is a fake cow rug |
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| Cute kitchenette with induction cooktop and minifridge |
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| The outside of the dome from the firepit side |
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| The firepit on our first night |
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| Reading by the fireplace, the light did something interesting here |
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| Woods by the lake |
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| The lakeshore |
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| Fun little Adirondack chair spot on the lake |
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| The domes were pretty close together. This looks like some kind of space village out of Star Wars to me, but that didn't bother me as much. |
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| Our dome was on the end, so most private in terms of other domes, but looked out onto cut trees galore. |
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| The view from the far side of our deck into the woods. Not quite so picturesque. |
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| More view from the deck. I guess they're building another maintenance shed. And storing a ton of things in the woods in a giant pile. |
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| This is the door to the shed at night. It was always lit up inside. The first night I might have yelled "knock if you need help!" because it was giving abduction/murder shed vibes. |
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| A catwoman entity by the lake |
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| This one initially scared the crap of us because it was literally in the woods, and then Bryce went to check it out and discovered it was a girl thing. |
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| Nighttime parallel play -- he's got a Lego knockoff kit, I've got a puzzle... |
























































