When to Let Go

I was scrolling through my phone this morning when I came across an NPR comic: Signs It's Time to Quit. Obviously the title appealed to me, because there are so many cultural and societal road blocks to "quitting," or letting go of a dream, or moving on from something that's just not working. I love when there are thoughtful pieces about taking control of your life and letting go of something (even something everyone tells you is the MOST IMPORTANT thing you'll ever do) so that you can live your best life. 

The comic has 7 signs, and each one spoke to me in some sort of way. The signs were a combined effort from three experts: Annie Duke, a cognitive psychologist; Colin Rocker, a career educator; and Angela Duckworth, a psychologist and professor. I thought I'd share the signs with you (go to the link above to see the comic, I don't think I can share pieces of it here without copyright issues), because wow were they validating. And sometimes...painful. 

Sign #1: You're seriously thinking about quitting.

Annie Duke said, "Our culture is biased against quitting, so if the thought stays on your mind, it means it's clearly been weighing on you and it could be time to make a change." That is an understatement. We are told over and over to "never never never give up." To hang in for the long haul, because sometimes things take time. And that's true, but sometimes no matter how long you try to make something work that just...isn't, it won't come to pass. Sorry, refrigerator magnets, you're kind of lying.  When we were going through our quest to parent, I had thoughts all the time after a while of "I don't know how much longer I can do this," but I quashed them because there was so much pressure to not give up and not quit. I started to feel like if I had those thoughts, I couldn't possibly want parenthood enough, and so I would double down on magical realism (these orange underwear will get me pregnant!) to my health's detriment. 

Another piece of advice in this section: "Set a deadline to give yourself a fixed amount of time to deliberate on your decision and come up with an off-ramp plan." I was terrible with this. Bryce, however, was terrific. For as much as I masterminded our runaway train that went nowhere fast, Bryce took over when it was time to stop. He would initiate the conversations of how much longer we should attempt to transfer an embryo when my uterus wasn't cooperating, and eventually I would agree. It was Bryce who, after our time in adoption led to so much stress that it non-hyperbolically threatened my life, had us take a springtime walk through a flooded park full of soggy flowering trees, and laid out how we could take control by deciding ourselves on a stopping point. He convinced me that we could have a little buffer time to think through, but that it was actually empowering to proactively say ENOUGH. And so we began the off-ramp. 


Sign #2: It's just not what you want anymore.

This one doesn't quite line up, because I wanted to be a mother so very desperately. For the longest time it was hard for me to even entertain the idea that I could go through everything and NOT parent. I did reach the point where what I didn't want was the constant stress, feeling of a life put on pause, indeterminate uncertainty, physical pain, and emotional pain of years and years of loss. Whether it was a negative pregnancy test, a miscarriage, a profile opportunity where the expectant parents went with another couple in the final pass...all of it made life unbearable. That's what I didn't want. And now, we can honestly say that we're fine not being parents. But it took a lot to get there. For a long time, all I saw was motherhood and I could not see through that thick want to recognize just how futile and self-destructive that quest had become. 


Sign #3: You would quit, if it weren't for...

Oh, ouch. From the comic: "Sometimes we've spent so long on a path that we feel like we have to stick with it, even when it's not beneficial. It's a phenomenon called the sunk-cost fallacy, says Duke." 

I felt this so deeply when I read it. It resonated. I felt so much like we would disappoint so many people if we walked away. And in a way, I was right, because the initial reactions to our news was often "NOOO!" or "YOU CAN'T" or "BUT WHY? YOU'D MAKE A GREAT MOTHER!" To be fair, these people were super invested in our success, and it's not really a common story to go through nearly 8 years of seeking parenthood through multiple means and have nothing pan out. But this is also why we waited to tell people until we had definitively made our decision, put it into motion, and even donated everything in our nursery. We felt terrible about all the support and love and things that people had provided throughout the journey and at our baby shower, but at that point, our happiness and wellness far outweighed anyone else's disappointment. 

This also resonated not just with infertility, but with leaving an unhealthy relationship. (Also, clearly it applies to jobs and such, since one author was a career educator.) In my first marriage, so many people were incredibly upset that I was marrying the person. One time, I was dropped off in front of my best friend's house by my irate fiancĂ©, who was screaming at me and even took off before I was fully out of the car. I stumbled to the curb, stunned, and then picked myself up, wiped my face with my hands, put my mask on my face (I had a lot of practice with pretending everything was okay loooong before infertility and adoption), and walked calmly to the walkway. I didn't know that my friend's mom was gardening out front where I couldn't see, and she had seen and heard EVERYTHING. There was no hiding. She was shaking and crying as she grabbed my arms and said, "You. Cannot. Marry. That. Man. You deserve so much more. You must think so little of yourself and it makes me so sad." I had validation! Someone had saw what I tried to hide, but I did not want it. My sad, broken response delivered with a smile? "But the wedding's in two weeks. I have my final dress fitting this week. It's too late. Besides, it's not always like this." 

Talk about sunk-cost fallacy. I felt that the expectation was that you marry the person you love no matter what, and calling off a wedding wasn't an option. How would I even do that? Where would I go? How could I face people? Better to adhere to what I said I would do. Even when I was married, and I knew that my relationship was dysfunctional and harmful, I didn't feel that I could leave just because I wanted a better life. I felt it would be shameful and stayed until there was what I thought was an acceptable reason -- rampant infidelity. So yes. I thought very little of myself, and all I could think of was that sunk-cost and all the what-ifs that paralyzed me until I had a concrete out. It was the inverse of the sunk-cost fallacy with infertility and adoption -- this time people wanted me to quit, but I felt a weird societal pressure to lie in the bed I had made and try to make the best of a situation. Good gracious am I grateful that I finally chose my own happiness, as hard as it was then, because it led me to the greatest happiness and joy of my life. 


Sign #4: Everything about it feels hard, like really hard. 

Ummmm, yes. That pretty much sums it up. Loss after loss after loss just took a cumulative toll, and after a while it felt delusional to think that things could work out. Although, man I kept trying, and bless Bryce, because he was willing to say NO! to me when I had "solutions" that would ultimately just make things harder. One of our very few big fights was when I suggested we sign on with a second adoption agency in our second year, that it might give us better odds, and he was just like, "NO. I can't do more than we're already doing, and honestly what we're doing is too hard on both of us, whether you see it or not." He was right. 


Sign #5: You don't love your chances of success. 

From the comic: "Calculate how likely you are to reach your goal by doing research....then find out how comfortable you are with your chances." This was so hard, thanks to society's cult of "never give up" and "miracle babies" that aren't evenly distributed. It always felt like, "if we just do it one more time it will work!" or "this next profile opportunity could be the one!" -- so I had to be the complete mess physically and mentally in order to accept that it was just too hard, and pretty much our odds were slimmer than slim. In IVF, people at the clinic or support group seemed to always get pregnant on their last try, with some wacky protocol that was experimental, or with a 13th cycle. I did do a 13th cycle (although several were cancelled just before transfer, my body still went through so much with the injectibles and ultrasounds that I count them), and it left me feeling utterly broken. Other people had profile opportunities all the time, or had a one in a million connection, or had "the call" right when they were going to walk away. It just didn't work for us. Even when a friend was chosen out of two final couples by expectant parents right after we left the process, I just knew... we would have been the other couple who, for whatever reason, were told "it just isn't your time." The agency used to say it was "worth the wait," but when the wait went on for years and was a death of a thousand cuts, we had to say our sanity and health were worth more. Again, kudos to Bryce, because he got to that point a LOT faster than me, but was still supportive until it was just too much.

 

Sign #6: Your loved ones say it might be time to let go.

This was a two-headed beast for our parenting journey. People were very supportive of us ceasing IVF, because the impact was so clearly evident on my body and our well-being. The financial cost was a known entity. People were willing to say to our faces, "how much longer are you going to do this to yourself?" and mean it out of love and care. 

But with adoption, the impact was mostly emotional (and also murkily financial, and most definitely ethical). The reality of domestic infant adoption is very, very different than the sanitized version presented in movies, books, magazines, religious organizations. It allows for very well-meaning people to see through incredibly rose-colored glasses that block out all kinds of ethical issues, inequities, and dehumanization of birth mothers. So there were very few people who thought we should leave adoption. It led to questions like, "what about international?" or "what about foster?" when the type of adoption we chose was deliberate based on many factors and we had our emotional reserves pretty well tapped already. There was a sense that the system should be there to MAKE US PARENTS, instead of what it truly is, to provide a loving and safe home for a child, who has to experience the loss of their first family in order to be welcomed into their adopted family. Even with open adoption, it's not a small loss. And, so often (but not always), the situations that resulted in placing a baby were based in inequality, poverty, and lack of services. That was very hard to wrap our heads around, and so many people have deeply ingrained beliefs on who "deserves" babies. Including, at the start, us. 


Sign #7: Your goal is costing you...a lot.

Not much to say about this one because I think by this point, you know just how much our goal was costing us. But there are two lovely quotes that really spoke to me from the comic that encapsulate what "giving up" can do for you: 

"Duckworth suggests looking at the opportunity cost: Is the time you're spending on this goal keeping you from investing in other things that might make you happier?" and "Think about what quitting could free you up to do." 


I wanted to be a mother. We wanted to be parents. We would have made EXCELLENT parents (at least we think so). But at some point, you have to stop beating the bloody pulp that used to be a dead horse. We chose to live the life we have, instead of constantly fighting every last thing to attain the life we originally wanted. It was not easy. It was saying goodbye to a dream that was central to our lives for so long...so we could say hello to a life where we were free to be happy, to live in the now. 

I am so glad that pieces like the comic are out there, to remind people that there ARE choices if things aren't working out. But also, that it IS NOT an easy button. It is hard. It is a huge loss. Everyone's ENOUGH is different -- but how lovely that there are explicit explorations of how you can evaluate your off-ramp. 

Still Here

Oh hi... This is the time of year where I disappear for a little while. Summer was short, and after I got back from vacation in August it was pretty much go time for back to school. I was so crazed in August that, and I am so embarrassed and saddened to admit this, I missed the submission deadline for World Childless Week. I will participate in the goodies, September 15-21, but I am so bummed that I forgot to get a piece in.

But now, my classroom is all set up (minus the things we co-create as a class), the first week is under my belt, Open House has come and gone, and this is the first FULL week. (Oh man, Open House -- where now I know some of the parents because I knew them when they had their kids...which is weird on SO many levels. Strange to think I could have had a middle schooler had things gone differently.)

I am enjoying my new schedule of 7th grade in the morning and 8th grade in the afternoon. I am getting to know my new kids and they are certainly realizing that I am a wackadoodle. Case in point, today in co-taught social studies a student was writing her own definition of "state of nature," and wanted to add more than "people do whatever they want." I asked her what it feels like to be in a state of nature, and she said "chaos" which is awesome, and I said "oh yeah, it's downright bananapants." She wrote that in her packet and insisted on sharing with the whole class, so I had to explain "bananapants" to everyone. "You know, bonkers, wackadoodle, kookoobananas..." Tee hee. 

I have some challenging kiddos, but I am enjoying getting to know them and figuring out ways to connect and push (but warmly) and make the growth happen. 

Before school starts, I panic. Every. Single. Year. Do I know what I'm doing? What if I forgot? How will I ever possibly get everything done? And then this week gets going and I remember -- I KNOW WHAT I'M DOING. AND I LOOOOOOOVE IT. Everything eventually gets done. 

I set up some systems since my schedule is a bit...bananapants: 

1st period I teach 12:1+1 (self-contained) Social Studies 7.

3rd period I teach 12:1+1 English 7.

5th period I teach Integrated Co-Taught Social Studies 8 on the Red team. 

7th period I teach Integrated Co-Taught Social Studies 8 on the Blue team. 

9th period I teach Resource Room 8 with my caseload of kids, which is half the 8th grade 12:1+1. 

The day goes by SUPER fast. I have to be super disciplined to get things done in those even periods, and figure out how to manage co-planning, coordinating with other case managers, coordinating with a zillion service providers, setting up systems to manage goals and progress monitoring, team meetings, meetings with mental health staff... No wonder I'm tired. 

I am eternally grateful that I can come home to a quiet house and take a nap on the couch if I need to. I am super grateful that Bryce tends to pitch in the first month and do most dinner/dishes during the week. I don't have to take young humans to sports or lessons or help with homework. When I leave, the evening is mine. 

Well, once I get the September exhaustion under control. But I have space to be an exhausted puddle on the floor or couch. Eventually I will either conquer the exhaustion or learn to live with it. :) 

Cheers to a new school year! 

Vacation Firsts

We came back from our vacation in Vermont and Maine, and it was glorious! There were absolutely zero isolated cabins on islands you have to canoe to that have no electricity. We did familiar things, but also experienced a few firsts. 


First #1: 

We went out on a sailboat! It was a sailboat tour, so we didn't actually have to do anything. No rope pulling or boom-swinging. 

This is a big deal because I am terrified of sailboats. We had originally booked a tour on a bigger boat that went out to the outer islands of Boothbay Harbor, but that boat needed repairs and so it was cancelled. So we had a choice between a mailboat for an hour that went to Squirrel Island and back, or the Bay Lady sloop for 1.5 hours that tooled around the bay, not quite in open ocean. Fun fact that we learned on the ghost walk tour, which was delightfully kitschy: most tours will tell you Squirrel Island is named because it is shaped like a squirrel holding a nut to munch on, but ACTUALLY, it is named after the ship The Squirrel that disastrously wrecked upon its shores. That's not why I didn't want to do the mailboat, though. It was more that a one hour ferry trip sounded kind of boring. 

What I didn't realize is that the word "sloop" means it's a SMALL boat. Like, a 12 person sailboat that's 31 feet long. That sounded terrifying. I have been on a sailboat only one other time, in the Long Island Sound when I was maybe 8, and I remember feeling like we were totally sideways in the water and I was going to die. Or it was a speedboat and I am misremembering, but I did associate doom with sailboats. Additionally, see sailboat disasters in Sleeping With the Enemy and the very upsetting White Squall. Although in Sleeping With the Enemy the sailboat disaster is also an escape hatch of sorts, the idea of tipping over into the sea wasn't exactly part of my vacation dreams. Oh! And Dead Calm, although the sailboat in that one isn't so much the problem as is the the weird water hitchhiker dude. 

Anyway, I was scared but I booked it anyway. I can do things that scare me! 

I did feel loads better when the captain (if that's what you call the head sailor guy at the wheel) said that the keel was 500 pounds or something, and so there was no way we would tip over. Tilt, yes, but we wouldn't flip. With that said, I thoroughly enjoyed every tilt and bouncy wake that we hit. It was delightful! 




First #2: 

The ENTIRE time we were away, not one person asked us if we had kids. Not. One. We stay at an inn in Boothbay Harbor, and breakfast is very bed-and-breakfast-y. Which can be delightful when you meet fun new people, and painful when you meet people that you wouldn't necessarily choose to hang out with (that happened a lot last year). This year, it was a lot of older couples or families, and some talked about their children in passing, but NO ONE asked us if we had kids. It was AMAZING! 

I can't tell if this is people realizing that asking people if they have kids is a mixed bag, or we've reached an age where kids aren't central to your daily existence so it's not like when people had toddlers or school-age children and it's literally EVERYTHING everyone talks about. Or maybe we're also looking older ourselves and that has something to do with it? We had 4 breakfasts there, and only one was just us because everyone else was an early bird. Lots of opportunities for the dreaded question. Not to mention dinners out, and when we were in Vermont (also an inn, but less B&B-y...you get your own table at breakfast). I sure hope this is the wave of the future! 


It was a delightful vacation, lots of reading and walking (good job, new knees!), visiting new spaces and activities, and truly relaxing. Here are a few more pictures -- it was sunny (but HOT) and just gorgeous. 

In a garden in Grafton, Vermont

Reading on the rocks in a cove

The cove


Full moon...best picture of a full moon I've ever taken! 

Reading a book about friends on the rocky coast of Maine while actually on the rocky coast of Maine

Braving the icy water in Hendrick's Head, although the shallow water wasn't bad
View from Hendrick's Head



Cozy Harbor

Shortly before we left for home, that hammock was the best!









Embryo Adoption in the News

A friend in the bloggy community sent me this article, about the baby born recently whose embryo was frozen 30 years ago. I'd seen it in my feed, but didn't click until she sent it to me. She sent it to me because the article mentions Snowflakes, the embryo adoption program through Nightlight Christian Adoptions, and I have a history with them. 

When we had embryos in storage, and knew we weren't going to use them, we were faced with a choice. I wrote about that in this post on My Path to Mommyhood: Embryo Adoption...Beginning the Process. It was very strange, because we were simultaneously waiting in adoption to become adoptive parents of an infant (you know how that turned out) AND placing our embryos with prospective adoptive parents. 

We hadn't chosen a Christian adoption agency because...we aren't Christian. So why, when we had a choice of what to do with our frozen embryos, did we choose the Snowflakes program through Nightlight Christian Adoptions? 

Well, because the ideology, while not ours, supports giving embryos chances to become babies. Even those that are a long shot, like our 6 2PNs from the donor egg cycle (still not sure why they were frozen at that early stage) and the 2 blastocysts from the donor sperm cycle. Those embryos were tricky for multiple reasons: 

1. They were each half donor material, and not the same half in both cases
2. The 2PNs were frozen wicked early and there was no guarantee that they'd survive thawing (Spoiler alert: they didn't)
3. Unlike what it says on the website link above, we were not successful in our treatments and dealing with extra embryos after having successful pregnancies. Neither of the cycles these embryos came from resulted in a pregnancy or birth. 

But, like a 30 year old embryo that was frozen using very old technology, Snowflakes believes that every embryo deserves a shot, and they have a program for "hard to place" embryos. Which I'm sure ours were. 

Despite our heathen status, Snowflakes was delightful to work with. There was zero judgment on our spiritual beliefs or lack thereof. We stated that we wanted our embryos to be available to LGBTQ+ recipients and/or single recipients, and religion was not a factor. They said they do occasionally have people seeking embryo adoption who fit those categories (but I bet it was a very small number). 

We were successfully matched with a couple in the Midwest, who seemed delightful and had a very nice profile book. Yup, we were reviewing profile books while our own profile book was getting very little traction. I don't remember their book mentioning religion at all, which is usually a bit of a tell (most religious couples mention their faith in their books pretty prominently). 

I'm pretty sure our lack of mentioning religion or church or prayer hurt us in our own adoption journey. Adoption seems to be a pretty religion-heavy process, even if you don't have an agency rooted in faith. Not hard to see, given that in the article above, the woman who donated the embryos said "[her] preference was for a married Caucasian, Christian couple living in the US. 'I didn’t want them to go out of the country,' [she said]. 'And being Christian is very important to me, because I am.'” 

I really loved working with Snowflakes and didn't feel othered at all for not being in the fold. 

What sucked was that eventually, all of the embryos crapped out. The 2PNs didn't survive thawing. The blasts thawed, but only one survived, and it resulted in a negative pregnancy test. We were so very sad, mostly for the couple who had taken a chance on very, very long shot embryos (we were so super transparent that our journey was a clusterfuck), but also for us. Had they been successful, we would have gotten updates, we would have gotten pictures if there was a birth, and we would have possibly been able to meet someone else's baby with my genetics. Which would have been real weird, but also, in a way, amazing. Especially because by the time that news came, it was September 2017 and our own journey to become parents had come to an end.

It also gave us an answer in a sense to whether or not a gestational carrier would have made a difference. Which was, in a way, also very sad -- there wasn't a piece of us that could have worked. 

It was interesting that in the article, they mention that many clinics don't take adopted embryos for transfer, particularly the hard-to-place ones. The couple we matched with had to travel over several states to get to their clinic, which I only recently realized was probably not because there wasn't a fertility clinic in their metropolitan area, but there wasn't one willing to do the transfer. You know the reason... the almighty success rates. 

Our doctor that we followed from one clinic to another was very down on embryo adoption as a concept -- he felt that it was a slippery slope and contributed to the "personhood" argument that continues to threaten IVF today. If you regard every embryo, every fertilized egg, as a human baby with rights, then IVF becomes a very risky business. That case where the couples sued the clinic for wrongful death (and then dropped it) over destroyed embryos is one example. But, for us, the choice to engage in embryo adoption made sense. 

Not because we are pro-life -- I believe in the right to choose because every situation is individual, it's not my business, and I don't enjoy the policing of women's bodies. And as people who believe in the right to choose, we also chose to try to give these embryos a shot -- not because we saw them as "extrauterine children" as the courts in Alabama decided, but because we saw them as having potential. Additionally, we created them on purpose, with a lot of love and effort, so why not give them a second chance elsewhere? 

I mean, couldn't there be secular embryo adoption programs, based on the Second Chance idea? (Per the hospital-based clinics we worked with... um no.)

I am grateful that Snowflakes was inclusive and nonjudgmental. I am grateful that they were behind open adoption practices. And, I am grateful that they were incredibly compassionate to everyone involved when our embryos didn't work for anyone. It was a wild chapter in our journey, that's for sure.  

What The Body Knows

I had a dream two nights ago that we were trying to get pregnant. It got real weird, and at the end my wonky subconscious was like, "you've been pregnant with twins this whole time!" I woke up unsettled. 

Later, in the evening, I was telling Bryce about it (even the weird parts), and he said, "is it some kind of anniversary, maybe?" 

Huh. I don't hold anniversaries in my memory. I have the blog record to tell me if I want to know, and frankly, most of the time I don't. But Bryce's question made me curious. 

Holy crap. THIRTEEN YEARS AGO (how is that even possible?) from when I had the dream, I was pregnant. Thirteen years ago yesterday, I was pregnant. And thirteen years ago today, I started to miscarry. 

That's just freaky. 

The summers were terrible in 2011 and 2012. I had two losses two years in a row, and because I tried to time cycles during my big chunk of time off, they were always around that July/August timeframe. It really sucked when people asked "how was your summer?" and I was like, "well, I thought I was finally going to be able to say I was expecting my first child, but um, nope, just more personal tragedy. How 'bout you?" 

I found the post, Hello/Goodbye, in My Path to Mommyhood, where I'd very helpfully put a timeline of my short-lived happiness and then devastation (maybe skip the photo if a timeline of someone's miscarriage is distressing): 


It brought me right back. It put a shadow over the evening yesterday, but I was already feeling inexplicably "off." 

I am so grateful that that part of my life is over. It was just one trainwreck after another. It's insane that the 7th graders I'll have next year will be the age that baby would have been. The 8th graders are the age my ectopic would have been. It's a weird feeling. Also weird -- with people retiring and lots of new people in the building, there aren't that many people who know about my saga. I'm coteaching with someone new who is a younger teacher Bonus: no kids on the About Me slideshow! No "as a mother" nonsense! No waxing poetic on the joys of grandchildren! Danger: she's been married for two years and bought a house last year, so it's not out of the realm of possibilities that she could be in that stage of family building relatively soon. Or not. Only time will tell. 

How odd that the body has memory, and will remind you of anniversaries even if you are trying not to hang on to that dark time. 

The Question That Must Not Be Asked

I had a dentist appointment today. It was rescheduled to today, actually, because now that I've had a knee replacement I have to take antibiotics 1 hour before any dental work including routine cleanings. I was halfway to the appointment last week when I realized I had completely forgotten not only to take the pills, but I hadn't even ordered them. Ooops. Now I have an alarm before the reminder for the appointment, TAKE YOUR DAMN PREMEDS!

Anyway, I took the 2,000 mg of amoxicillin (which made me feel crappy the rest of the day), and off to the dentist I went. 

The hygienist was someone I hadn't had before, and she was lovely. Chatted for a while before, asked about the knee replacements, asked about summer plans, and then got cleaning. 

While we were chatting, she mentioned that she and her husband are the only people who live in this area, that everyone else lives in the DC area. She didn't mention kids at all. 

I had an insane urge to ask, because I suspected she didn't have kids, but...

I TAMPED THAT SHIT DOWN. 

What the hell was I thinking? NO! BAD! Even if I would be asking out of kindred spiritship (that may not even be accurate), it's not okay to ask. Probably, if she had kids, she would have mentioned them. People with kids tend to lead with stuff about their kids. Also, she didn't ask me if I had kids. I feel like people without kids don't tend to lead with that, either. 

Either way, it was none of my business. But man, it was weird to have the urge to ask the question that I myself dread! I'm glad I resisted. 

Periods and PCOS

This week, I read a book and listened to a podcast that made me sad for my younger self, but hopeful that things are (mostly, maybe) changing for the better for today's young girls/people who menstruate. 


The book was Period. End of Sentence.: A New Chapter in the Fight for Menstrual Justice by Anita Diamant (if that name sounds familiar, she wrote The Red Tent so apparently she has a theme). If the title of the book sounds familiar, there was a short documentary with the same name, connected with The Pad Project, that won an Oscar in 2019 and is available on Netflix. The book was inspired and connected to the film, with a Foreward by Melissa Berton, an English teacher who is the founder of The Pad Project

It's a really great book. I learned SO much. It explores the stigma behind periods, indigenous rites of passage that were squelched by colonizers, how people are addressing period poverty in the U.S. (1 in FIVE girls experiences it) as well as globally. I learned about early period products: I had no idea that the first commercial menstrual cup was invented in 1937 by an actress named Leona Chalmers, so it's not a new thing (although it fell out of favor for decades). Tampons became commercially available in 1931, but with all sorts of misinformation about how they break the hymen and make you not a virgin (what?!?!) or promote promiscuity (oooh, don't you feel so sexy and turned on when you're changing tampons? RIDICULOUS). I learned that in prison, most period products are available in the commissary, which means you have to have money, and if you don't, and your makeshift TP pad leaks blood onto your uniform, you can be in violation of rules about uniforms and LOSE ACCESS TO THE COMMISSARY. WTF. There's the (completely logical) thought that if toilet paper, soap, and paper towels are provided for free in public restrooms, why on earth wouldn't period products also be provided, since they are a NECESSITY and not a luxury item? Also, that there should be no separating by gender for health discussions about puberty, because boys should learn about menstruation so they don't think it's unmentionable, and girls should learn about nocturnal emissions so it's not a mystery, and trans youth should not be put in the position of deciding which class to go to. I thought that practice wasn't happening any more, but I guess, per the book, depending on where you live it is still very much the case that boys learn about boys and girls learn about girls and everything is shrouded in mystery and shame. 

My favorite part was a blessing in the Jewish faith for your first period (menarche): 

A meditation for menarche before immersing

I welcome this stage of Womanhood with a mixture of 
emotions.
I don't know what the future will bring or how this great change 
in my body 
will bring changes to other parts of my life. May I always respect 
my body and the potential it holds. 

I would love if someone could explain "immersing" to me in this context, but apart from that, I absolutely love that this blessing does NOT assume that a period means children. I absolutely love "I don't know what the future will bring" as opposed to "every period is a potential for life and will bring children/a baby/pregnancy." How refreshing. How amazing. I love that potential is in there, but it can mean many different things. So, it's not setting you up to believe that period = fertility. Because...it doesn't. Clearly.


Which brings me to the podcast that I listened to, This Podcast Will Kill You, and the episode (181) on PCOS (polycystic ovarian syndrome). Entitled PCOS: Beyond the Cysts, it delves into what PCOS is, what we know about it, what (sad and shoddy) treatment there is, and longtime impacts. It is so well researched, and I absolutely loved that the intro, which is always a first-hand account, was a story told by a trans man -- not the PCOS story you often hear! The hosts are two women named Erin, who are disease ecologists and epidemiologists, and one is a family medicine practitioner. 

One of the Erins (Allmann Updyke) started by saying that she was diagnosed with PCOS, and in researching this episode found out all kinds of things that she did not know, and that she will use as a primary care physician moving forward. 

They talk about how the cysts mentioned are not necessarily the kind of giant ovarian cysts that burst, but the "cysts" that are follicles in various states of development that arrest before they are released. They also talk about how it is not an ovarian disorder, it's an ENDOCRINE disorder. Which means, it impacts so much more than fertility, which is usually when diagnosis happens. Grrrr. There are lifelong consequences: propensity for Type 2 Diabetes, higher risk for stroke, higher risk for heart attack, higher risk for obstructive sleep apnea. How interesting to find that my high cholesterol and high lipid count are likely thanks to my PCOS! How infuriating that my diagnosis didn't come with that information, and nobody seemed to give a crap about it once I wasn't trying to get pregnant! 

So, my diagnosis didn't come until my fertility workup at 33 that involved discussing how a) my period is wildly unpredictable and without birth control could happen only 2 times per week and last for EVER and be super heavy and painful, and b) my ovaries looked like "chocolate chip cookies" and had tons of follicles that had started and then paused. Which meant that IUI was difficult, because PCOS tends to respond very enthusiastically to fertility injectibles that make lots of follicles mature since some have a head start. Also, apparently that doesn't mean that egg quality is awesome, probably because of the follicles that were paused, which is probably why once we did IVF I had 20-something follicles and retrieved eggs in the high teens to 20s, but then only 3 or less were typically mature and viable, which is super confusing and disappointing when the initial news is YOU'RE AN EASTER BUNNY!, an actual statement by one reproductive endocrinologist in my journey. Sigh. I always wondered why it was a Great Whittling, from zillions of eggs to very few that would fertilize. I guess I know more now. 

Meanwhile, my entire early days of my period were a nightmare because of the unpredictability, heaviness, and length. Counting did not work. Ever. And, as I learned in the podcast, within the first 3 years of your period starting, it's typical for your period to be irregular. But after 3 years, if it's still irregular, it is a red flag (haha, red flag). For me, it was interpreted not as a medical issue, but a character flaw. I couldn't track properly. I wasn't prepared. I was lazy and inattentive. When actually, I joked about my "immaculate miscarriages" since I was absolutely a virgin until college, but if I wasn't, what a stressful time that would have been. I finally got on birth control before going off to college, and for the first time I could predict my period (although I definitely had breakthrough bleeding and horrible periods didn't end, which was likely because of the adenomyosis discovered when I excised that uterus in my 40s). 

Meanwhile, I had embarrassing leakages, ruined many a pant/short/skirt/underpant, and once bled through my shorts to the point that I left a puddle of blood in my chair while taking my Physics Regents my senior year because they wouldn't let me go to the bathroom more than once during the 3 hour test. I was punished while on a cruise vacation for my (ill advised) rage at my mom when she berated me for not bringing tampons and said it was my fault (natural consequence) that I was missing an aquatic preserve that I had so been looking forward to because my period chose THAT MOMENT to arrive. I mean, the rage was I whacked my mom with a wet swimsuit while screaming THIS ISN'T MY FAULT!!!, which could have been handled differently by 17-year-old me, but also... IT WASN'T MY FAULT. I was given very little compassion until I was on the Pill and had a pretend regularity that could be depended on. 

Pretend, because it hid my PCOS until I tried to get pregnant in my 30s. Getting put on the Pill takes care of symptoms, but it DOES NOT CURE THE DISORDER. And, in fact, it masks it, leaving you unwitting about all the health concerns and the infertility aspect. 

For instance, before the podcast I did not know that because your lining builds up and then isn't expelled thanks to the reluctant-to-release eggs, you are at higher risk for endometrial cancer because that tissue just sits stagnant and has a greater chance of changing. Well, more reasons to be grateful that I got a hysterectomy and removed that nasty uterus. Literally, NO ONE has ever mentioned the cancer risk to me. Which I would think would be important information to have. 

Also, I have been told how my BMI is too high (the Erins hate BMI, and SO DO I, it's a terrible measure, invented by a man), my cholesterol is too high, my lipids are too high, and I need to lose weight. I am not a tiny person, but I am not a large person either. I walk and do Pilates and I don't eat a lot of crap. I have ALWAYS had belly fat, even when I was a teenager running track who weighed 120 pounds. While I can influence things to a point, it is ridiculously hard to make significant change in that arena because my body just doesn't change all that much (even less now that I'm in perimenopause). Oh! Isn't it interesting that that's probably in part due to my PCOS! It makes a lady real mad.

No one has talked about the possibility of taking metformin, or that insulin resistance could be a culprit, either. It's like women's health is largely ignored and maladies are too often subscribed to personal choices. Harrumph.

This is why I love the Erins. They are trying to move that dial. They cover all kinds of topics, and speak loudly about the need for research in women's health and including trans people in the conversations as people with ovaries and people who menstruate. 


Between the two -- the book and the podcast -- I was left feeling hopeful that periods are being more frankly discussed with less shame and that more information on PCOS is being put out and discussed openly. I wish that there was more knowledge and less shame when I was growing up, but I'm so glad that things will hopefully be better for young women/menstruators today.